Monday, September 28, 2009

Don't trust anyone over 30

Tomorrow I will be 31. My birthday present will be a PICC line and my first dose of IV Rocephin. It's not cake, but it'll do.


at 2:11 PM

1 comment:

  1. CSeptember 29, 2009 at 9:10 AM

    Hello,

    I stumbled upon your blog while looking up vegan ice cream. I found it very interesting, while I have never had lyme (though tested for it numerous times) I was diagnosed with CFS in 2002. I don't really know what caused it, but reading some of your entries made me remember everything i went through. I was in college at the time, so people didn't understand why i never went out for two years or dated anyone, but i could barely do my homework and almost failed out a semester.

    Anyway, It took me about 5 years to feel better, at a time when i was supposed to be young and having fun! Sometimes, i still get tired and am always afraid of going back to that place when i never felt good, i would get lost driving places i had been to before and sleeping my free time away. I suppose the residual effects of my illness are being easily run down if i don't take care of myself and mentally not knowing if what is wrong is in my head or real now that i am 'better.'

    I remember being bounced from doctor to doctor, and being asked if i was depressed all the time. Now, i live in fear that overexertion will bring me back to those days.

    I am always saddened by the years i lost being sick, but i can only focus now i the years ahead where i will get to do all the things i wanted to do back then (run again, bike long bike rides, pilates, yoga, get better at surfing, long hikes in the mountains). Im 27 now and sometimes it feels like i am behind everyone in doing all these things, but i am thankful that now i can go for a 45 minute walk instead of a 10 minute walk, and do a whole pilates workout instead of just half.

    I mostly wish that people knew how debilitating it was to have CFS, and that I could just say, I had CFS, instead of having to explain in detail exactly what happened to me and how it affected me, because it was my life for so long.

    Anyways, i hope your road to recovery begins to shorten.

    - C

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